I hope we can make participation in health research as exciting and engaging as many other kinds of popular cultural activities, like museums, sports, theater, etc. How many people can name their favorite research studies? Or favorite scientists? Or recount any positive experiences participating in health research? Let's change that!
You can find me online:
reprogrammed cells available from NYSCF (ID # 050967-01-MR)
You'll see that I've shared my whole genome sequence publicly. I don't think this is appropriate for everybody. But, if you're considering it, check out the letter I wrote to my family. Please feel free to adapt and use it for your own purposes. I'm also collecting letters other people have written their family members. Feel to free to contribute yours.
Harvard Personal Genome Project