Open Humans is a platform that allows you to upload, connect, and privately store your personal data – such as genetic, activity, or social media data. Once you've added data, you can choose to donate it: you might choose to share some publicly , and you can join and contribute to diverse research projects. Thus, we turn the traditional research pipeline on its head: you are at the center and in control of when you share your data. We want to empower you to explore your data – for example, enabling you to analyze your genome or your Twitter data.
For researchers and citizen scientists, Open Humans offers a toolbox to easily create new projects which can efficiently ask an engaged audience of participants to join and contribute. or join research projects. So far our community has contributed 19 different tools to enable data import from external sources at the touch of a button, as well as numerous projects that help members explore data and invite them to contribute to research. Thanks to this growing community, new data sources, visualizations, and research projects are continuously becoming available. Take a look into how many people are already using Open Humans.
All of this makes Open Humans a vibrant community. People are intrigued by their own data! For this reason, there is no single user profile: we are researchers; patients; data scientists; citizen scientists; any and all people who want to learn more about themselves. And they have continued to be enthusiastic, motivated, and truly engaged in the work of the organization.
We'd love for you to join us in this, analyzing your data, creating projects and adding data sources. Together we can help empower a thriving community to make the best use of their personal data.
In a sense, our "team" is enormous – the Open Humans community is filled with amazing members, citizen scientists, and researchers that make science something we can all be part of. We're humbled by this! Our formal staff is a small team committed to making this community a success.
Mad is the Executive Director of the Open Humans Foundation and co-founder of Open Humans. Mad is also a Shuttleworth Foundation Fellow, pursuing a vision of open approaches to human health data sharing.
Bastian is Director of Research of the Open Humans Foundation, and facilitates our collaborative work with projects, studies, and the Open Humans community at large. Bastian has a long history in open science, including his work with openSNP, which he co-founded in 2011.
Steph is a developer with a background in research and open science. Steph helps manage the Open Humans code, informatics, and operations. She has experience with complex systems programming, web development, and front end design – and she's also skilled at entomological specimen preparation!
The Open Humans community is evergrowing. Without the contribution of each and every member we could not exist. Community members give their data, their time, and their creativity. Thanks to them we can thrive. Meet some of our dedicated community members.
"The Data Commons approach allows people to donate their data anonymously to research. It also makes this data more easily available for research, including to people (patient researchers) who aren't affiliated with an organization."
"It's a very personal choice to share health information. What is right for me isn't necessarily right for everyone."
"Because researchers and participants have a much more collaborative attitude … you really feel like you’re a part of the science, not just another anonymized identifier in a database."
Open Humans is a program of the 501(c)(3) nonprofit Open Humans Foundation and has been funded by the Robert Wood Johnson Foundation, Knight Foundation, and Shuttleworth Foundation. Our 2015 launch was written up in Forbes, Newsweek, Scientific American, and more.
We believe in sharing. This website is an open source project, as are as other modules, packages, and code in our technical stack. You're welcome to create "issues" in our repository and comment on our code. However, please report security issues privately by emailing us at firstname.lastname@example.org.