Data sharing and ethical oversight
Data source Academic/

Data sharing and ethical oversight

Led by: Prof. Dr. Effy Vayena
ETH Zurich
Contact email:
  • Joined by 225 members.

The goal of this project is to investigate which mechanisms of ethical oversight you think should apply to research projects such as those conducted on Open Humans.

You will be asked to answer questions about your past data sharing experience, your beliefs regarding data sharing, and your opinion on some ethical principles.

Because this project will not ask for access to your personal Open Humans data, you will also be asked some basic demographic questions about yourself.

Your answers will help improve the Open Humans platform and contribute to a shared understanding of research project oversight.

Completion of the survey lasts approximately 18 minutes.

A copy of the consent form is available here:

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This project requests the following permissions from members that join it: