Data sharing and ethical oversight

Managed by:
Prof. Dr. Effy Vayena
ETH Zurich

Data sharing and ethical oversight

Managed by:
Prof. Dr. Effy Vayena
ETH Zurich

About Data sharing and ethical oversight

The goal of this project is to investigate which mechanisms of ethical oversight you think should apply to research projects such as those conducted on Open Humans.

You will be asked to answer questions about your past data sharing experience, your beliefs regarding data sharing, and your opinion on some ethical principles.

Because this project will not ask for access to your personal Open Humans data, you will also be asked some basic demographic questions about yourself.

Your answers will help improve the Open Humans platform and contribute to a shared understanding of research project oversight.

Completion of the survey lasts approximately 18 minutes.

A copy of the consent form is available here: https://www.openhumans.org/data-management/datafile-download/64745/

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Members can opt in to receive their own answers and/or all answers as an aggregate from the project once the study is over.

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Project information

Managed by:
Prof. Dr. Effy Vayena
ETH Zurich
Joined by: 232 members
Launched: June 13, 2018
Project website:
Contact email: effy.vayena@hest.ethz.ch
Project informed consent:
Uploaded data:
Members can opt in to receive their own answers and/or all answers as an aggregate from the project once the study is over.

Your Data

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